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On Being an ePatient: презентация
Содержание
- 1. On Being an ePatient:
- 2. What is an ePatient? Equipped Enabled Empowered Engaged
- 3. My Life in Paper
- 4. Why I became an ePatient Several chronic
- 5. Personal Experiences Patient Centered Medical Home at
- 6. Personal Experience Focus on perfectionism Control! Compliance! Linking to support College!
- 7. Randomness and chaos is
- 8. Stigma - Barrier or Motivation? Barriers Misinformation
- 9. How I Became Involved JDRF Research
- 10. What Quality of Life Improvements Are Most Important? N=654 ©2013 DiabetesMine Patient Voices Survey
- 11. Diabetes Intrudes #DayOfDiabetes “Mommy, can
- 12. Characteristics of an ePatient Looking for
- 13. Caregivers are also ePatients 39% of
- 14. Self Trackers/Quantified Self Diabetics are by
- 15. How Do Patients Track? How do people
- 18. Health IT Changing ePatient Landscape Social Media
- 19. ePatients Online 31% of adults with chronic
- 20. Pew
- 21. What do ePatients Share? Treatment information Medications
- 22. What resources do ePatients turn to online?
- 23. Diabetes Online Community #DOC Diabulimia Helpline
- 24. ePatients Not Just Online Providers are
- 27. What Would Most Motivate You to Put
- 28. Change from Perfectionism to Positivism “Scott
- 29. How to engage and collaborate with an
- 30. Education - When ePatients Know More Healthcare
- 31. Educate Through Resources Reputable online websites
- 32. Collaborate – A Colleague in My Care
- 33. Coordinate Patients have multiple providers
- 34. ePatients at the Center Primary Care Doctor Me Hospital CDE Specialist
- 35. Support Support Groups Online Communities
- 36. Considerations when engaging Health literacy Cultural
- 37. Social Media (Facebook, Twitter, Online Communities)
- 38. Information Dissemination (Websites & Social Media)
- 39. New Technologies Pros Better management Allows patient
- 40. Mobile/Web Apps Pros Efficient Low Cost Innovative/Interactive
- 41. EHRs & Patient Portals Pros Records accuracy
- 42. PHRs Pros Ability to take your information
- 43. Medical Devices Pros Connect more and more
- 44. Telehealth Pros Reaches remote populations Cost efficient
- 45. e-Patient Dave on OpenNotes / Let Patients Help speech to AMSA, March 2014
- 46. e-Patient Dave on OpenNotes / Let Patients Help speech to AMSA, March 2014
- 47. The value of an ePatient Better management
- 48. As an ePatient I Am Equipped
What is an ePatient? Equipped Enabled Empowered Engaged
Слайд 1On Being an ePatient:
Erin M. Gilmer
@GilmerHealthLaw
erin@gilmerhealthlaw.com
Equipped, Enabled, Empowered, Engaged
Слайд 4Why I became an ePatient
Several chronic conditions
Little support from friends and
family
In College
Personal struggles with coping
Socioecomic factors (insurance/costs)
Need for control
Personal Interest in health policy
In College
Personal struggles with coping
Socioecomic factors (insurance/costs)
Need for control
Personal Interest in health policy
Слайд 5Personal Experiences
Patient Centered Medical Home at Barbara Davis Center
Research studies
Adopting new
technologies
Слайд 8Stigma - Barrier or Motivation?
Barriers
Misinformation
Embarrassment
Depression
Motivation
Want to know the information & beat
the stigma
Слайд 9How I Became Involved
JDRF
Research Studies
Diabetes Development
And Awareness at University of Colorado
Twitter
Conferences,
PCORI, Nebular Health Tech
Слайд 10What Quality of Life Improvements Are Most Important?
N=654
©2013 DiabetesMine Patient Voices
Survey
Слайд 11Diabetes Intrudes
#DayOfDiabetes
“Mommy, can you please play with me?” Saying “not yet”
is one of the worst parts of low blood sugars. #parenting #dayofdiabetes
@Sixuntilme (Kerri)
@Sixuntilme (Kerri)
Слайд 12Characteristics of an ePatient
Looking for information and trying to learn
Collaborate with
providers
Share information across platforms
May have 1 or more chronic conditions and be a caregiver
Share information across platforms
May have 1 or more chronic conditions and be a caregiver
Слайд 13Caregivers are also ePatients
39% of US adults care for a loved
one
Includes family and friends
More likely to be a patient themselves
Includes family and friends
More likely to be a patient themselves
©2013 Pew Research Institute
Слайд 14Self Trackers/Quantified Self
Diabetics are by default self-trackers
“As patients it’s not enough
that we have to live with the disease itself. We have to live with the data management as well.”
- Kim Vlasnik (Texting My Pancreas)
- Kim Vlasnik (Texting My Pancreas)
Слайд 15How Do Patients Track?
How do people track in general?
49% - in
their heads
34% - pencil and paper
8% - medical device (like glucometer)
7% - mobile app
5% - computer program
1% - websites
34% - pencil and paper
8% - medical device (like glucometer)
7% - mobile app
5% - computer program
1% - websites
©2013 Pew Research Institute
Слайд 18Health IT Changing ePatient Landscape
Social Media (Twitter, Facebook, Online Communities)
Online Resources
(Research, WebMD, ADA)
New Technologies/Devices (CGM’s, Pumps)
Apps (Weight/Diet/Glucose Tracking)
EHRs & Patient Portals
Telehealth
New Technologies/Devices (CGM’s, Pumps)
Apps (Weight/Diet/Glucose Tracking)
EHRs & Patient Portals
Telehealth
Слайд 19ePatients Online
31% of adults with chronic conditions go online to try
to figure out what medical condition they or someone else has
1 in 5 internet users have gone online to find patients like them
4 in 10 internet users share personal stories
1 in 5 internet users have gone online to find patients like them
4 in 10 internet users share personal stories
©2013 Pew Research Institute
Слайд 21What do ePatients Share?
Treatment information
Medications
Technology
Personal Stories
Stories of other ePatients
Education/Research/News
Слайд 24ePatients Not Just Online
Providers are still by far the most important
aspect in patient care
Only 5% receive information online with a healthcare professional or fellow patient
Only 5% receive information online with a healthcare professional or fellow patient
©2013 Pew Research Institute
Слайд 27What Would Most Motivate You to Put Extra Effort Into D-Management?
©2013
DiabetesMine Patient Voices Survey
Слайд 28Change from Perfectionism to Positivism
“Scott was diagnosed with Type 1 diabetes
in 1970 and grew up expecting to go blind, lose a limb, and probably die before he could graduate college. Nearly 45 years later, he is a father, live-in caregiver for an elderly parent and has suffered from clinical depression for as long as he can remember”
- Scott Strange (@Strangely_T1)
- Scott Strange (@Strangely_T1)
Слайд 29How to engage and collaborate with an ePatient
Clinicians are the top
source of information
Need to
Educate
Collaborate
Coordinate
Support
Need to
Educate
Collaborate
Coordinate
Support
Слайд 30Education - When ePatients Know More
Healthcare professionals cannot become experts in
everything
Educated ePatients should be considered part of the healthcare team
If ePatients aren’t listened to:
Frustration and Feelings of loss of control
Medication errors and proper resources denied
Educated ePatients should be considered part of the healthcare team
If ePatients aren’t listened to:
Frustration and Feelings of loss of control
Medication errors and proper resources denied
BMJ article “What happens when patients know more than their doctors”
Слайд 31Educate Through Resources
Reputable online websites
Printed materials
Phone numbers for support groups
Apps
Слайд 32Collaborate – A Colleague in My Care
Ask where the patient is
right now and what is most helpful to them
Include in decision
making process
Include caregivers
Encourage use of EHRs (and PHRs)
Include in decision
making process
Include caregivers
Encourage use of EHRs (and PHRs)
Слайд 33Coordinate
Patients have multiple providers
Be a voice for patients
Encouraging providers to engage
with ePatients
Слайд 36Considerations when engaging
Health literacy
Cultural influences
Economic influences
At what level do they want
to engage?
In what format do they want to engage?
In what format do they want to engage?
Слайд 37Social Media
(Facebook, Twitter, Online Communities)
Pros
Support Systems
Sharing information
Cons
Privacy Issues
Слайд 38Information Dissemination
(Websites & Social Media)
Pros
Ability to research anything
Patient forums for
support and information
If you lose the pamphlets given to you, you can look it up
Cons
Not always accurate
If you lose the pamphlets given to you, you can look it up
Cons
Not always accurate
Слайд 39New Technologies
Pros
Better management
Allows patient to be more engaged
Ease of sharing information
electronically
Cons
Expensive
Information Overload
Not all providers up-to-date on technology
Cons
Expensive
Information Overload
Not all providers up-to-date on technology
Слайд 40Mobile/Web Apps
Pros
Efficient
Low Cost
Innovative/Interactive
Cons
Too many to consider – cannot decide which is
best
Doctors don’t know them
Doctors don’t know them
Слайд 41EHRs & Patient Portals
Pros
Records accuracy
E-prescribing attributes
Patient portals get test results to
patients faster and they can download them
Cons
Frustration by providers
All still in beta form
Portals not very meaningful
Cons
Frustration by providers
All still in beta form
Portals not very meaningful
Слайд 42PHRs
Pros
Ability to take your information with you wherever you go
Ability to
enter in information your doctor might not have
Cons
Do not connect with Patient Portals in EHRs
Doctors may not pay attention to them
Cons
Do not connect with Patient Portals in EHRs
Doctors may not pay attention to them
Слайд 43Medical Devices
Pros
Connect more and more to other mobile/web apps and EHRs
Ability
to track metrics over time
Cons
Security of devices
FDA regulation uncertain
Cons
Security of devices
FDA regulation uncertain
Слайд 44Telehealth
Pros
Reaches remote populations
Cost efficient
Cons
Removed from in-person care that may be needed
to address more serious issues
Слайд 47The value of an ePatient
Better management
Greater coordination/collaboration of care
Increased health literacy
Educating
and engaging peers and those they care for
Patient Safety
Patient Safety
Слайд 48As an ePatient I Am
Equipped
Enabled
Empowered
Engaged
Erin
Erin M. Gilmer
@GilmerHealthLaw
erin@gilmerhealthlaw.com
